C-PTSD Mental Disorder That “Doesn’t Officially Exist”

I spent 40 years helping people with PTSD, mostly veterans. Considered an "expert" and knew enough to save lives. The problem is, because of everything I read, the therapists I saw, PTSD in me was missed. I survived 10 events but the only one that followed me wherever I went was after my first husband tried to kill me. I filed for divorce and he stalked me after that for a long time. The thing is, it stayed with me every time I heard the kind of car he drove. It hung on even though I got married again 38 years ago and moved thousands of miles away from him. The nightmares, flashbacks, mood swings and paranoia didn't stop coming with the roar of an engine until I found out he passed away. So yes, this is a very real thing we suffer from, but the other real thing is, we can heal and surviving the cause, is nothing to be ashamed of. I'm proud I survived, fought back and recovered enough to live a full life, even with the residual of what happened to me. You can too! Learn as much as you can about what PTSD is and find support. It is out there. 

Praise to Stephanie Foo for doing this! Keep in mind, every mental "disorder" did not exist until it had a name after it was proven it had been there all along!

What It’s Like to Be Diagnosed With a Mental Disorder That “Doesn’t Officially Exist”

Slate
BY STEPHANIE FOO
APRIL 07, 2022

What My Bones Know Stephanie Foo
Excerpted from What My Bones Know by Stephanie Foo. Copyright © 2022 by Stephanie Foo. Excerpted by permission of Ballantine Books, an imprint of Penguin Random House LLC. All rights reserved. No part of this excerpt may be reproduced or reprinted without permission in writing from the publisher.

Learning about C-PTSD is not easy because it doesn’t officially exist. The name “complex PTSD” is somewhat new, coined in the ’90s by psychiatrist Judith Herman. And it doesn’t exist because it isn’t officially in the Diagnostic and Statistical Manual of Mental Disorders, which is essentially the bible of mental health: If it’s not in there, it ain’t real. There was an effort by a group of mental health experts to include it in the DSM-5, which was published in 2013, but the faceless arbiters of mental health behind the DSM—a group of psychiatrists I envision as a society of hooded figures chanting around a sacrificial child star—decided that it was too similar to PTSD. There was no reason to add a “C,” no need for a distinction between the two. It’s worth mentioning, however, that the U.S. Department of Veterans Affairs and the United Kingdom National Health Service both recognize C-PTSD as a legitimate diagnosis.

Because it isn’t in the DSM, there isn’t much literature on C-PTSD. What does exist is often dry, dull, and written with all the kindness and emotional intelligence of a tech bro. But still, I was desperate to learn, so I bought a small stack of books, each with a vague impressionist painting on the cover coupled with uninviting font. And I made my way through them, one painful page at a time.

The books taught me that when we live through traumatic experiences, our brains take in the things around us that are causing the greatest threat, and they encode these things deep into our subconscious as sources of danger.
read more here