Neurosurgeon desperately needed in New England

Wounded Times

Kathie Costos
February 27, 2024

URGENT Neurosurgeon desperately needed in New England

I am posting this FOR THE LOVE OF JACK

After a couple of years of my husband's suffering, we finally had an answer as to why it was happening to him. He had an MRI that showed too much fluid in the ventricles of his brain. They suspected it was Normal Pressure Hydrocephalus.  

In between May and November, he was in and out of hospitals and rehabs. He was sent home with visiting nurses and for a while, he went into physical therapy as an outpatient. Eventually, we were told that nothing would work until he had a spinal tap to see if he improved.

We had to wait to see a Neurologist. That finally happened in November. He diagnosed my husband and it was as others suspected. The Neurologist was certain it was not brain shrinkage. He sent the MRI and report to a Neurosurgeon. We finally saw him in January.

First, he said he was sure it was brain shrinkage and ran down a list as to why nothing would help. I was not about to let my husband leave that office without knowing how the Neurologist was sure that was not his problem. Long story short, he excused himself, left the exam room, and returned to say he was willing to try a spinal tap.

The spinal tap was done last week and it helped but he needed a blood patch because of a really bad headache. That made him improve even more. I had hope again. That hope was crushed today when the Neurosurgeon called to tell me why a shunt wouldn't help and that all of a sudden his diagnosis was that my husband's nervous system was shutting down. He keeps changing what he's saying, so all trust in him is gone.

It is bad enough to see my husband suffer all this time, and then have to wait months for experts. Most of us have to deal with that. When you end up with an expert who can't decide what is happening or what to do about it, that's torturous. 

My husband went from going to the gym 5 times a week and riding his Harley, to not being able to walk and riding a wheelchair in two years. You know we've been together since 1982 and we'll be married for 40 years this year. This is the longest we've been away from each other. Watching him suffer is tearing me apart and that's why I haven't been able to focus on much else. My life and work are on hold because I'm falling apart. 

I feel blessed to have great people helping us get through all this and doing all they can to figure out what else they can do. If you've heard bad things about the VA, it isn't the VA doctors we have a problem with. It is out in the community because New Hampshire doesn't have a VA hospital. The VA has been wonderful. I don't know how I would have gotten through all this without them. 

I also feel blessed to have such loyal readers and I am praying someone knows a Neurosurgeon who can help my husband, or at least give us a second opinion that will make sense. I am desperate and pleading for help because if anyone deserves it, it is my husband. He's the reason why I've helped veterans and their families for over 40 years. All I do is because of him, so if you have found help with my books, videos, or posts, it is because of him. If I spent time with you on the phone and helped you find hope that you can heal, it was because of him. This time I need help from you for him. PLEASE HELP US FIND THE HELP HE NEEDS.